What do you do when you’ve unpacked all your trauma? You’ve folded it all neatly and put it away. Donated what you no longer need. Now what? Why is this suitcase still chained to my ankle?
I have come to the conclusion That misery is my soul mate I have tried countless times To break up with it Or move away Only to find that it always Ends up at my feet Groveling for my attention It’s wretched fingers Intertwine with mine And it drags me down Again and again It’s a never ending constant So maybe I should stop fighting it Come to terms with the fact That misery might be my greatest legacy Love it as it has loved me
You guys want to know how aggravatingly difficult it is to be chronically sick in America? I have done it more than once, but let me tell you again. For the past two years, I have been on Stelara injections every 8 weeks for my Crohn’s disease. I am currently in remission thanks to the help of this drug that is priced at over $20,000 for a single 90mg shot. Take note that I said I have been on this drug for two years. I am due my next injection tomorrow. Last week I called the hospital pharmacy because they had not called me yet to refill the medication. I was told that the insurance is requiring another pre authorization in order to fill the script. They don’t just process these astronomically priced drugs unless they get insurance approval first. Forget the fact that the prescription itself is a pre authorization from the doctor. She says I need it, so what is the problem? The problem is that these fucks want to make it harder for me, they want me to give up. I spent 45 minutes on th...
I will bother to write because Andrea Gibson no longer can. Their voice is gone from this plane, but mine still has some air in it. Andrea wrote these poignant words shortly before they passed. "Dying is the opposite of leaving. I want to echo it through the corridor of your temples. I am more with you than I ever was before." "I am more here than I ever was before. I am more with you than I could have imagined." "I decided I was too soft to last. But then I decided to be even softer." "You keep worrying you're taking up too much space. I wish you'd let yourself be the Milky Way." "Andrea would want you to know that they got their wish. In the end, their heart was covered in stretch marks." My social media feed is filled with Andrea's words. They touched more people than they could ever have imagined. Their voice will ring in our ears for years to come. Endlessly. Perfectly. I am so fortunate to have walked the Earth at the...
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